Clinc appointment and our little star

Corwin had a cardiac clinic appointment today...the big check up with his heart consultant including a heart scan (echo). The consultant was very pleased with his progress! Without going into too much detail, he had a leaking valve and a dilated left ventricle ( his only ventricle) and both of these have improved! His Sats (oxygen levels)were 82% (100% in a healthy person) so a good level for his condition at present. I asked the consultant about life expectancy and he said there are children now reaching adulthood who have had the three stages of surgery and they are living a good quality of life. Corwin has a long way to go, but if his next op goes well we have every reason to hope he lives to become a young man.

Well done Corwin, my little star who amazes us each day!

abi x

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I have put a photo at the top of this post showing our little star in the local paper!

About Corwin!

I thought this blog was missing some waffle about what Corwin is like!! Ofcourse I cannot stress enough how amazing he is, but I will try and sum up his personality!

Corwin is a very laid back little boy! He doesn't trantrum (yet!), he has patience and seems to have a very watchful eye. We call him our little proffesor as he seems to study objects and people a lot. He will hold objects and turn them round and round , up and down , trying to work out what they are for. He loves anything with buttons to press.
He loves other people so is very easy to take out and about as he will enjoy looking at new strange faces. He is quiet , but not timid.
He is developing a little sense of humour and likes to pull faces if he has had enough of his drink and then grin at me! He knows he is being a cheeky so and so!
He has discovered gravity and loves to push things off the table onto the floor and throw his building blocks...not something I taught him!
He loves going to bed and I leave him smiling each night as he clutches his hands together over his head. He started sleeping through at 8 months although I have to give him medication at 1am so I am not!

He is such a gorgeous little boy who is very cuddly and loving! Amazing little man!

abi x

Corwin First Birthday!!!

My little man turned one on Wednesday! He had a party on the Sunday before, which was meant to be a Teddy Bears' Picnic, but in true bank holiday fashion it rained, so it was more of a chaotic indoor party with teddies here, there and everywhere! Poor Tom had to stand outside and BBQ! Corwin seemed unaware of all the fuss and just enjoyed looking around at all his friends and family. He is a very laid back little boy and did not find it overwhelming at all.

On his actual birthday, we took him to the zoo! He enjoyed watching the monkeys but banged his head on the glass as he leaned in to get a closer look, he was brave and manged to hold back tears. From late afternoon through to the evening family popped round with presents. He was completely spoiled and I have 26 thank cards to write!

He had too many presents to list here, but we redecorated a room into a playroom for him. What a spoiled little man!

It was quite an emotional week, he has been through so much and we are so grateful that he is here with us. I kissed him goodnight and asked him to be here for lots of birthdays X