just wanted to update as Corwin had a clinic appointment and am so pleased how it went! It was an interesting appointment!
I think our prayers have been answered as his valve leak has gone!! It has leaked since birth and has got worse with each surgery..His new medicine (captopril) is magic stuff! His sats were 81% and he weighs 22lb!
We saw our consultant but we spoke mainly to a new registrar who was great! He spent a long time looking at Corwin's scan and explained yet again to us his complex heart...we were previously told Corwin has 'Tricuspid Atresia , but not tricuspid atresia' and asked him to explain this!! He said that Corwin has a 'uni ventricular heart' and he is totally missing a ventricle and has only one atrium. Literally half a heart. The ventricle is rudimentary , so impossible to know whether he is missing the left side or the right side of his heart-One is missing anyway. His one and only valve could be a tricuspid or a mitral valve, so they call it an AV valve. His Aorta and pulmonary artery each lead off from the wrong side of the heart so they are transposed (TGA).
The registrar said he is doing so well. So pleased with my little man! A bit confused that his heart could be hypoplastic left or right but never mind! It is beating and he is with us and happy.
abi x
PS the photo above is of Corwin dressed as a frog for his cousin's birthday party!
