Brotherly love!

Just wanted to share these photos. Corwin is very good with Rowan and Rowan smiles and laughs at Corwin lots! It is lovely seeing them start to interact.

Corwin's Clinic Appointment

Corwin had a cardiac clinic appointment today and it went very well. He had the usual Sats check ( Oxygen levels in blood), blood pressure, weight check...then ECG and the Heart Echo. He cried like crazy for each and every one of these as he was taken from one room to the next. The final room was to speak with a registrar and even though the room had cosy table and chairs only he screamed through the entire consultation. I was hoping after 6 months since the last appointment he would be fine , but he was worse than ever before. He did enjoy walking around the waiting and play area with his frame though and he got lots of attention from the staff! He is such a show off! The registrar spoke to our consultant and gave us feed back from all his tests ( we usually speak with the consultant but were happy he had seen the echo and results). The registrar said Corwin was stable and that there was no plan to do anything at the moment.His SATs were 80%. We will see them in 9 months (a record length of time) and maybe a cardiac catheter will be considered then to go in and take a good look at his heart. For those who don't know , a catheter is procedure where a fine tube is threaded into the heart , for children under a General Anesthetic. It is a bit like the key hole of cardiac surgery. For Corwin it will be diagnostic only but sometimes catheters are used to close small holes, open holes , stent arteries etc. Normally they would enter the catheter through the top of the leg , but this time I am guessing they will enter Corwin through his neck. It is a straight forward procedure.

Anyway, things are stable, so we can relax for 9 months!

Well done Corwin!

abi x