Monday 30 June 2008



Just wanted to share some nice news that Corwin is walking really well with a new frame. He tried it for the first time with physio today and after about 15 mins he was walking everwhere with it. He was so excited! He is really ready to be independent and is becoming very strong minded. He can pick it up slightly to turn it round, infact he is a bit too good that he is scaring me as he goes far too fast and there are plenty of things for him to knock into in my house! I cant slow him down. There is also a tiny step onto laminate flooring in his playroom , but he slows down and carefully steps up or down it (see photo)...one day he might forget He did go too fast with it and banged into the patio doors...however the second time he remembered and stopped way ahead of the doors! eeek he is going to keep me running round after him now!


Only downside was that it absolutely exhausted him even though he was not on it long. I am unsure how much to let him use it as he does not know his limits yet. He went to bed a very tired, grumpy, crying boy.


abi x

Friday 27 June 2008

Fundraising event

















On Monday my family held a fundraising event for 'Little Hearts Matter'. We held a 'not so serious' wine tasting evening, at the prestigious Stapleford Hall, including a 4 course meal , raffle and quiz. We raised a fantastic £5145 ! You can click on the link to the right to learn more about Little Hearts Matter', a charity that supports families of children with single ventricle conditions. We have made lots of friends through the charity, met lots of children that have given us hope for the future and learned lots about living with a child with such a complex condition. We know the charity will continue to be a support as Corwin has further surgery , starts school, grows into his teenage years and hopefully beyond. The charity is a great support particularly for women who are pregnant and given the diagnosis and need to find answers and support quickly.

Thank you to all my family, especially Dad for your efforts, it was a great evening!

Photos above from top - Corwin's Granny speaking, Tom and I, Corwin's Grandpa speaking, Corwin's Grandad drinking!, Corwin's uncle Adam handing out one of the many wines and Tom and Corwin's Nanna.

abi x









Thursday 5 June 2008

Happy Second Birthday Corwin!




It was Corwin's birthday on Friday! He had a small party involving party food at a village hall then moving to his Granny and Grandpas' garden for outdoor play! We were very lucky with the weather! Granny and Grandpa's motorised tractor was a big hit with the children, with only one child becoming run over! Corwin's favourite presents included a sandpit, swing, water table, train set and some peppa pig toys!


Cant believe he is 2 already! He is looking quite a grown up boy despite not walking or talking yet. He is eating well, sleeping well and is an absolute joy to be around - lovely company!.


Happy birthday my special little man!


abi x