Corwin Update!

It has been far too long since I last posted an update on Corwin’s Blog mainly because Corwin has been very well and keeping me busy! He is now nearly 21 months and looks more and more like a little boy rather than my baby boy! Since I last wrote here, Corwin has started crawling at 18 months ( hence I have been busy!). His development since his operation last February has been delayed, we think due to a post operative stroke. He is able to move both his sides well, but is a little weak all over with poor balance and has slightly shaky movements now and then. We have seen a neurologist who believes he may have an area of dead brain, but has ruled out an doing MRI scan to look for this due to the risk of having a general aesthetic with his heart condition. Plus, although he is delayed physically, he should have no lasting effects from the stroke. He has been having phsyio and is cruising around the sofas nicely! No sign of walking for a while yet, but we have just had an appointment for some orthopaedic boots to help strengthen his ankles on his ridiculously small feet! Heart wise , his cardiologist is very pleased with him. His heart function is good with Oxygen SATs around 80%. His valve leak is back and is mild to mdoerate, but he is on medications that are helping and it is not a huge concern.


Corwin was spoiled again this Christmas! He was far more aware of what was going on and loved unwrapping his presents. He was poorly again with a tummy upset, as he was last year, so did not fancy any turkey and vegetables and needed a long sleep, but enjoyed his day.

In January we took him on a five day break to Center Parcs with my brother, his wife and two young boys. The Pool was a big hit, and with lovely warm temperatures Corwin didn’t go blue at all! (Children with low oxygen levels tend to go blue in water). As well as loving the pool, he loved the children’s soft play area and managed to climb two soft steps!

Overall, Corwin is doing very well. He is a content, well behaved little boy who is very interactive with adults and children for his age. He loves pretending to feed his teddy ( or mummy or daddy!) in his new kitchen and puts his arms up to any adult in the room for a cuddle. He loves wooden jigsaws and sorting shapes. He concentrates amazingly well. Although he has not said his first word, he understands many and knows most of the main body parts and can follow simple commands.

I have been teaching Corwin where my tummy is, as it is fast swelling with his little brother who is due in May! We are very excited and think Corwin will be a perfect big brother. The baby’s heart has been scanned and all is looking normal.

I will try and update more often from now on! I have added some photos of Corwin at Christmas and on holiday.

Abi x