Oh dear , it’s been far too long since I updated Corwin’s blog. After our holiday to the Isle of Wight Corwin settled back into Preschool with confidence. He now goes for four morning sessions of 2.5 hours with full one to one support. He had his end of term report recently (!) which says ‘he is really growing in confidence’ and ‘is starting to form friendships’. He also seems to have a talent for jigsaws as his concentration is excellent. I am told he is a well behaved boy at preschool.
Corwin has generally been well but did have 6 days in hospital with pneumonia just before Christmas. Because of his heart condition the chest infection caused his oxygen levels to dip to only 50% so he needed several days on oxygen, iv fluids and iv antibiotics. He coped very well with everything and I was surprised how well behaved he was. He was very distressed at times for example when they had to take blood or put his canular in ( it came out twice) but he did not fight any of the doctors and did not pull at any of the many wires and tubes. We missed his cardiology appointment while he was in so we see Glenfield on January 11th to discuss his next stage of surgery. Corwin also missed his first ever nativity play , he was going to be a King.
Thankfully Corwin came home a week before Christmas so we were able to get things organised and enjoy Christmas day at home. The boys were thoroughly spoiled as usual, Corwin even had gifts left to open on Boxing Day! It was a quiet Christmas day as we had lunch at my parents then my parents joined us for tea at ours. The boys behaved so well! They carefully opened presents , played nicely and ate plenty. We even had a white Christmas here so took the boys outside to make a snowman! Corwin’s toys included a giant car garage, duplo house, Mr Potato Head, various Thomas the tank Engine gifts and much more. Rowan had a rocking horse, duplo zoo, In the Night Garden gifts etc.
We don’t have anything planned to see in the new year. We have some sparklers left over from Bonfire Night so may take the boys outside with them before bed. 2010 is set to be a stressful year as Corwin is likely to have three operations. Lets hope 2010 goes as smoothly as possible.
Happy New Year!
Abi x
Thursday, 31 December 2009
Monday, 12 October 2009
I realised it has been quite some time since I last updated Corwin’s Blog!
Corwin is doing very well. He has new glasses and orthopaedic boots, and has started Speech and Language group sessions. He has started back at preschool doing four mornings a week and has settled in again very quickly. He still has one to one support and his confidence has grown so much! It doesn’t seem to tire him out that much which is fantastic and shows his heart condition is not worsening. We have a cardiac appointment in December.
We had a busy summer as we had work done on our house which was a little stressful! Corwin enjoyed watching the carpenter , may have to get him a childrens tool kit for Christmas!
We went away on holiday in September to the Isle of Wight. A friend of mine lives there so it was great to meet up. We were very lucky with the weather and were able to eat outside each day and enjoy plenty of visits to the beach. Corwin even managed to go in the outdoor heated pool twice, which he loved but he went blue and breathless after a short time.
My brother ran at the Little Hearts Matter charity run at Shugborough Hall yesterday, raising over £600 for them! Excellent, well done Adam! He wore a tshirt with ‘Running for Corwin Meynell’ on it as Corwin will never be able to run long distance.
Not much else to report, Corwin’s little brother has started walking – it was only 9 months ago that Corwin took his first steps! It is lovely seeing them play more and more and trying to talk to each other!
I have put some photos of our holiday above.
x
Thursday, 17 September 2009
Thursday, 20 August 2009
Wednesday, 24 June 2009
Saturday, 20 June 2009
I thought it was about time for an update!
Corwin had his cardiac check on Monday. We were a little anxious to have him checked as his Oxygen SATs have been dipping to 67. However the appointment went well and the doctor said they are not too concerned that he is dipping to around 70 and they dont want to do his next is until he is bigger (he is 13.5kg). His Sats are around 80 at rest - phew! His heart function is the same as at his last appointment so they are happy to leave him another 6 months and not put him forward for a pre op catheter just yet. They said at the next appointment they may put him on list for one. So we can relax for 6 months and not worry too much!
I had a meeting the day after his heart check with his Special Needs Inclusion Teacher ( teacher who comes to the house once a week to work with him), his preschool leader and his health visitor. The meeting was to set targets for Corwin in an IEP ( Individual Education Plan). The meeting went well. His preschool have assessed him at aged 16 - 26 months ( he is 37 months) but say he is making progress. His confidence has really grown and he will go to preschool four mornings a week from September. His language is the main area of concern as he is still not using any real words. He uses a limited number of sounds - just 'b' and 'd' and all the vowels. He uses lots of expression and emotion when he babbles and is very sociable considering he can't say words! He is going to be sssessed for statemening which will hopefully be in place for when he starts school so he gets the support he needs. The HV is referring him for hearing test as it's been two years since he has one. His eyesight seems to be getting worse and preschool have noticed this too. We see a consultant next month.
Corwin has been such a happy little boy lately, full of fun! He and Rowan interact more and more - they like to copy each others noises, chase each other, and generally make each other laugh. So cute!
We are off to a birthday party at a farm tomorrow and it is also father's day , so I will try to remember to take photos and post them here.
abi x
Corwin had his cardiac check on Monday. We were a little anxious to have him checked as his Oxygen SATs have been dipping to 67. However the appointment went well and the doctor said they are not too concerned that he is dipping to around 70 and they dont want to do his next is until he is bigger (he is 13.5kg). His Sats are around 80 at rest - phew! His heart function is the same as at his last appointment so they are happy to leave him another 6 months and not put him forward for a pre op catheter just yet. They said at the next appointment they may put him on list for one. So we can relax for 6 months and not worry too much!
I had a meeting the day after his heart check with his Special Needs Inclusion Teacher ( teacher who comes to the house once a week to work with him), his preschool leader and his health visitor. The meeting was to set targets for Corwin in an IEP ( Individual Education Plan). The meeting went well. His preschool have assessed him at aged 16 - 26 months ( he is 37 months) but say he is making progress. His confidence has really grown and he will go to preschool four mornings a week from September. His language is the main area of concern as he is still not using any real words. He uses a limited number of sounds - just 'b' and 'd' and all the vowels. He uses lots of expression and emotion when he babbles and is very sociable considering he can't say words! He is going to be sssessed for statemening which will hopefully be in place for when he starts school so he gets the support he needs. The HV is referring him for hearing test as it's been two years since he has one. His eyesight seems to be getting worse and preschool have noticed this too. We see a consultant next month.
Corwin has been such a happy little boy lately, full of fun! He and Rowan interact more and more - they like to copy each others noises, chase each other, and generally make each other laugh. So cute!
We are off to a birthday party at a farm tomorrow and it is also father's day , so I will try to remember to take photos and post them here.
abi x
Monday, 1 June 2009
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