Brotherly love!

Just wanted to share these photos. Corwin is very good with Rowan and Rowan smiles and laughs at Corwin lots! It is lovely seeing them start to interact.

Corwin's Clinic Appointment

Corwin had a cardiac clinic appointment today and it went very well. He had the usual Sats check ( Oxygen levels in blood), blood pressure, weight check...then ECG and the Heart Echo. He cried like crazy for each and every one of these as he was taken from one room to the next. The final room was to speak with a registrar and even though the room had cosy table and chairs only he screamed through the entire consultation. I was hoping after 6 months since the last appointment he would be fine , but he was worse than ever before. He did enjoy walking around the waiting and play area with his frame though and he got lots of attention from the staff! He is such a show off! The registrar spoke to our consultant and gave us feed back from all his tests ( we usually speak with the consultant but were happy he had seen the echo and results). The registrar said Corwin was stable and that there was no plan to do anything at the moment.His SATs were 80%. We will see them in 9 months (a record length of time) and maybe a cardiac catheter will be considered then to go in and take a good look at his heart. For those who don't know , a catheter is procedure where a fine tube is threaded into the heart , for children under a General Anesthetic. It is a bit like the key hole of cardiac surgery. For Corwin it will be diagnostic only but sometimes catheters are used to close small holes, open holes , stent arteries etc. Normally they would enter the catheter through the top of the leg , but this time I am guessing they will enter Corwin through his neck. It is a straight forward procedure.

Anyway, things are stable, so we can relax for 9 months!

Well done Corwin!

abi x

Just had to share these photos of Corwin tucking in to a chocolate lolly! A colleague of Tom's visited Corwen in Wales! He had no problem finishing it all off!

Corwin also went to his cousin's fancy dress birthday party as Postman Pat and so we 'dressed' his walking frame as the van!

abi x

Corwin had an appointment with his general paediatrician yesterday to check on his general health and development - just one of the four clinics Corwin is under! The Doctor basically oversees all of Corwin's treatment for everything. His cardiologist only really looks at his heart whereas his paediatrician looks at 'Corwin'. He seemed pleased that Corwin is making steady progress in all areas and listed all the 'help' Corwin is having - Physio Therapy, Speech and Language Therapy and a Special Needs Teacher from the Early Years team who spends over an hour a week with Corwin at home. It would be so difficult for me to go to back to work with all the appointments we have! Corwin is still not walking , now 2 years 4 months (see chart at the bottom of this page!) but is using his walking frame with ease. He is not saying any words but plenty of sounds and is definitely communicating but in his own little language with a lovely little sense of humour! We like to look at what he can do rather than cant. He weighs about 28lb / 13kg and is 82 cm tall.
His little brother Rowan is growing fast and Corwin showers him with kisses and gives toys to him - he is a very caring, affectionate big brother.

I just love the photo of them above. They both look so cute ready for bed. Corwin looks young for his age so it is hard to believe there is two years between them from this photo!

abi x

Summer Break in Norfolk

Hello! We took the boys for a mini break to Norfolk. The weather was kind to us considering what a shocking summer we have had , yet again! We only went for two nights but managed to squeeze in two swims in the hotel pool, two visits to Great Grandma, a long play at 'Play Barn' farm and an afternoon at the beach. Corwin had lots of fun on the tractors and he enjoyed the sand but kept eating it! He loved holding our hands and paddling in the sea. He was absolutely exhausted after just three days. He managed just short naps in the car and missed his long afternoon sleeps and it shows he really needs them still to 're-fuel'. He looked quite a poorly boy on the way home and now has a cough and runny nose :( Am sure a few days with some long sleeps will have him back to his self soon.

Above are some photos!

abi x